today i had the pleasure of seeing my wonderful haematologist, dr sahu. a petite man with a tiny waist and unusually hairless skin… jo and i aren’t sure if he even has facial hair… but he is lovely and made me feel very positive today.
basically i went along for my normal week 2 bloods and dressing change for mr PICC line, and mentioned that i had some chest pain which seemed a bit worse since the weekend. the wonderful pevensey team sprung into action and did an ECG, then nice swift dressing change and slight reposition of line (it turns out that when i have had a bit of a pinchy digging in feeling it was a bit of plastic tubing digging in… ooops!) blood came up nicely (thank you for prayers). then as luck would have it, the ward round was going on so dr sahu popped in to the day unit to see me. i got sent for a chest x ray, which took a while to sort out as they wanted a porter to take me. i tried pointing out that i’d be fine to walk there, after all i had managed to walk in to the hospital without keeling over… (eventually i was allowed to walk there with a nurse escort. a bit ridiculous!).
next i had to walk up and down the ward with a sats probe on to monitor my oxygen levels as i walked. i can’t remember what this is testing for – (physios, nurses help me out, its been a while since i did wards!) on my return from x ray dr sahu had a good listen to my chest and heart and reassured me he didn’t think it was anything to worry about, and that the ECG was normal. what was really cool was that he felt my neck and said the lumpy nodes there had completely gone down! i hadn’t even thought about them recently! he also said the chest pain could be ludwig shrinking and pulling on all the tissues he has wound himself around at the front of my chest (die ludwig die). it was so reassuring to see how certain he is of success. he thinks that at my 3 month scan the tumour will have shrunk to 50% its original size, and that all the mess with the heart and pericardium will be resolved! hurrah! then at 6 months it should all be completely gone. he was really confident of this which i think is really encouraging as dr’s normally have to be quite cagey about this kinda stuff in case they get it wrong. it makes me feel so much more positive about chemo when tells me stuff like that. especially hearing him objectively say my neck nodes are normal again.
what was most amusing today was that during my line change, blood test etc jo felt a bit faint, so the nurses had to get him juice and fruit! (turns out he hadn’t drunk any fluids all day. dumbass.) i had to mention it in the blog as even though he didn’t pass out or anything it was rather funny! i was so glad jo took the afternoon to come with me as i did get worried. just because lately when i’ve had investigations and tests for things, it doesn’t bring good news. just him being beside me was so calming and wonderful. it did make me think i would much rather have a hospital buddy when i go in, even for the non chemo days, because you never know what might come up.
so there it is! another monday! oh and for those of you who are interested the knitting went very wrong today. mum will have to rescue it at the weekend. alas.